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The Times

‘I know my ache is not your pain’ – disabled writers imagine a healthier world

  • Written by Andy Jackson, Creative Writing Lecturer, The University of Melbourne
‘I know my ache is not your pain’ – disabled writers imagine a healthier worldLeft to right: Beau Windon, Andy Jackson, Robin M Eames.

There are many reasons why I shouldn’t be here. If you’d shown my ten-year-old self my life as it is now, he’d have been stunned, mostly because he half-expected an early death. My father, who had Marfan Syndrome, the genetic condition I have, died when he was in his...

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